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Alzheimers Patients Spouses Critiques of the Support Services

機譯:阿爾茨海默氏癥患者配偶對支持服務的批評

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摘要

Introduction. Caregiving families of patients with dementia are often reluctant to use support services. The aim of this study was to describe their subjective critiques of these services. Material and Methods. A cross-sectional questionnaire was sent to a random sample (N = 1943) of Alzheimer's patients' spouses in Finland with an open-ended question: “What kind of problems have you faced with the services?” Their responses were analyzed with thematic content analysis. Results. Of the responders identifying themselves as caregivers (N = 1386), 728 (mean age 77.8, 65.1% females) responded. Opinions could be divided into two categories: (1) problems with the service application process (N = 296); (2) critiques of the services offered (N = 270) including either problems with community care support services or institutional care. 74 indicated that they had no need for services, and 15 praised the services they had received. Conclusions. From the caregiver's perspective, the service system is complicated, bureaucratic and works organization centredly.
機譯:介紹?;加邪V呆癥的患者的護理家庭通常不愿使用支持服務。這項研究的目的是描述他們對這些服務的主觀批評。材料與方法。我們向芬蘭的阿爾茨海默氏癥患者配偶的隨機樣本(N = 1943)發(fā)送了橫斷面調(diào)查問卷,其中有一個開放式問題:“您在服務中遇到什么問題?”他們的答復與主題內(nèi)容分析進行了分析。結果。在確認自己為看護者的響應者中(N = 1386),有728位(平均年齡77.8,女性占65.1%)做出了響應。意見可分為兩類:(1)服務申請過程中的問題(N = 296); (2)對所提供服務的批評(N = 270),包括社區(qū)護理支持服務或機構護理方面的問題。有74人指出他們不需要服務,有15人稱贊他們所獲得的服務。結論。從看護人的角度來看,服務體系是復雜的,官僚的,并且工作組織是集中的。

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